Transition to adulthood of adolescents with profound intellectual and multiple disabilities: Content validation of the SGU-PIMD to support families

Nicole van den Dries-Luitwieler; J. Luijkx; H.A.  Van der Steege; Anneke Grootoonk; Cees van der Schans; A.A.J. van der Putten; Aly Waninge

doi:10.1111/jar.13161

Transition to adulthood of adolescents with profound intellectual and multiple disabilities: Content validation of the SGU-PIMD to support families

Vertaalde titel van de bijdrage: Transitie naar volwassenheid van adolescenten met ernstige verstandelijke en meervoudige beperkingen: contentvalidering van de Groeiwijzer-EMB ter ondersteuning van gezinnen

Nicole van den Dries-Luitwieler, J. Luijkx, H.A. Van der Steege, Anneke Grootoonk, Cees van der Schans, A.A.J. van der Putten, Aly Waninge

Rotterdam University of Applied Sciences, Research Centre Innovations in Care, Rotterdam, The Netherlands
Rijksuniversiteit Groningen, Faculteit Gedrags-en Maatschappijwetenschappen, Inclusief Onderwijs
Rijksuniversiteit Groningen, Universitair Medisch Centrum Groningen, Centrum voor Revalidatie
University of Groningen, University Medical Center Groningen, Department of Health Psychology

Onderzoeksoutput: Article › Academic › peer review

Samenvatting

Background
For families with adolescent children, the transition to adulthood is usually challenging. This period may be extra demanding for families with a child with profound intellectual and multiple disabilities due to the child's strong and persistent support needs. To support these families during this phase and to facilitate the transition process of these adolescents, we adapted the Canadian skills for growing up (SGU) into the skills for growing up-profound intellectual and multiple disabilities (SGU-PIMD). The aim of this study is to determine its content validity.

Method
A Delphi study with family members and healthcare professionals was conducted.

Results
Results showed good content validity. However, the Delphi panel suggested minor adjustments to improve relevance, comprehensibility and comprehensiveness.

Conclusions
The current SGU-PIMD can be used in practice for supporting adolescents with profound intellectual and multiple disabilities. However, there are also recommendations for research into the feasibility and acceptability of the instrument.

Vertaalde titel van de bijdrage	Transitie naar volwassenheid van adolescenten met ernstige verstandelijke en meervoudige beperkingen: contentvalidering van de Groeiwijzer-EMB ter ondersteuning van gezinnen
Originele taal-2	English
Artikelnummer	e13161
Tijdschrift	Journal of Applied Research in Intellectual Disabilities
Volume	37
Nummer van het tijdschrift	1
Vroegere onlinedatum	4 okt. 2023
DOI's	https://doi.org/10.1111/jar.13161
Status	Published - 4 okt. 2023

Keywords

adolescentie
kwaliteit van het gezinsleven
meervoudige ernstige beperkingen
transitie
verstandelijke beperking
volwassenheid

Research Focus Areas Hanze University of Applied Sciences

Healthy Ageing

Research Focus Areas Research Centre or Centre of Expertise

Gezonde leefstijl en leefomgeving
Kwetsbaarheid en passende zorg

Publinova thema's

Overig
Recreatie, Beweging & Sport
Gezondheid
Mens en Maatschappij

Toegang tot document

10.1111/jar.13161

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Citeer dit

van den Dries-Luitwieler, N., Luijkx, J., Van der Steege, H. A., Grootoonk, A., van der Schans, C., van der Putten, A. A. J., & Waninge, A. (2023). Transition to adulthood of adolescents with profound intellectual and multiple disabilities: Content validation of the SGU-PIMD to support families. Journal of Applied Research in Intellectual Disabilities, 37(1), Artikel e13161. https://doi.org/10.1111/jar.13161

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title = "Transition to adulthood of adolescents with profound intellectual and multiple disabilities: Content validation of the SGU-PIMD to support families",

abstract = "Background For families with adolescent children, the transition to adulthood is usually challenging. This period may be extra demanding for families with a child with profound intellectual and multiple disabilities due to the child's strong and persistent support needs. To support these families during this phase and to facilitate the transition process of these adolescents, we adapted the Canadian skills for growing up (SGU) into the skills for growing up-profound intellectual and multiple disabilities (SGU-PIMD). The aim of this study is to determine its content validity. Method A Delphi study with family members and healthcare professionals was conducted. Results Results showed good content validity. However, the Delphi panel suggested minor adjustments to improve relevance, comprehensibility and comprehensiveness. Conclusions The current SGU-PIMD can be used in practice for supporting adolescents with profound intellectual and multiple disabilities. However, there are also recommendations for research into the feasibility and acceptability of the instrument.",

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van den Dries-Luitwieler, N, Luijkx, J, Van der Steege, HA, Grootoonk, A, van der Schans, C, van der Putten, AAJ & Waninge, A 2023, 'Transition to adulthood of adolescents with profound intellectual and multiple disabilities: Content validation of the SGU-PIMD to support families', Journal of Applied Research in Intellectual Disabilities, vol. 37, nr. 1, e13161. https://doi.org/10.1111/jar.13161

Transition to adulthood of adolescents with profound intellectual and multiple disabilities: Content validation of the SGU-PIMD to support families. / van den Dries-Luitwieler, Nicole; Luijkx, J.; Van der Steege, H.A. et al.
In: Journal of Applied Research in Intellectual Disabilities, Vol. 37, Nr. 1, e13161, 04.10.2023.

Onderzoeksoutput: Article › Academic › peer review

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T1 - Transition to adulthood of adolescents with profound intellectual and multiple disabilities

T2 - Content validation of the SGU-PIMD to support families

AU - van den Dries-Luitwieler, Nicole

AU - Luijkx, J.

AU - Van der Steege, H.A.

AU - Grootoonk, Anneke

AU - van der Schans, Cees

AU - van der Putten, A.A.J.

AU - Waninge, Aly

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van den Dries-Luitwieler N, Luijkx J, Van der Steege HA, Grootoonk A, van der Schans C, van der Putten AAJ et al. Transition to adulthood of adolescents with profound intellectual and multiple disabilities: Content validation of the SGU-PIMD to support families. Journal of Applied Research in Intellectual Disabilities. 2023 okt. 4;37(1):e13161. Epub 2023 okt. 4. doi: 10.1111/jar.13161