Reliable assessment of pain behaviour in adults with profound intellectual and multiple disabilities: The development of an instruction protocol

A.  Enninga; Aly Waninge; W.J. Post; A. A. J. van der Putten

doi:10.1111/jar.13089

Reliable assessment of pain behaviour in adults with profound intellectual and multiple disabilities: The development of an instruction protocol

A. Enninga (First author), Aly Waninge, W.J. Post, A. A. J. van der Putten

Participatie en gezondheid van mensen met een verstandelijke en visuele beperking

University of Groningen, Department of Inclusive and Special Needs Education

Onderzoeksoutput: Article › Academic › peer review

Samenvatting

Background: Persons with profound intellectual and multiple disabilities (PIMD) are vulnerable when it comes to experiencing pain. Reliable assessment of pain-related behaviour in these persons is difficult.
Aim To determine how pain items can be reliably scored in adults with PIMD.
Methods: We developed an instruction protocol for the assessment of pain-related behaviour in four phases. We used videos of 57 adults with PIMD during potentially painful situations. The items were assessed for inter-rater reliability (Cohen's kappa or percentage of agreement).
Results: The developed instruction protocol appeared to be adequate. Twelve items had satisfactory inter-rater reliability (n = 9: .30–1.00; n = 3: 85%–100%).
Discussion: Calibrating and adjustments to the instructions and item set appeared to be crucial to reliably score 12 items in adults with PIMD. Further research should focus on creating an assessment instrument based on these reliably scored items.

Originele taal-2	English
Pagina's (van-tot)	1-11
Aantal pagina's	11
Tijdschrift	Journal of Applied Research in Intellectual Disabilities
Volume	36
Nummer van het tijdschrift	3
DOI's	https://doi.org/10.1111/jar.13089
Status	Published - 13 mrt. 2023

Keywords

betrouwbaarheid
ernstige meervoudige beperkingen
instructieprotocol
pijnevaluatie
volwassenen met PIMD

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10.1111/jar.13089Licentie: CC BY-NC-ND

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title = "Reliable assessment of pain behaviour in adults with profound intellectual and multiple disabilities: The development of an instruction protocol",

abstract = "Background: Persons with profound intellectual and multiple disabilities (PIMD) are vulnerable when it comes to experiencing pain. Reliable assessment of pain-related behaviour in these persons is difficult. Aim To determine how pain items can be reliably scored in adults with PIMD.Methods: We developed an instruction protocol for the assessment of pain-related behaviour in four phases. We used videos of 57 adults with PIMD during potentially painful situations. The items were assessed for inter-rater reliability (Cohen's kappa or percentage of agreement).Results: The developed instruction protocol appeared to be adequate. Twelve items had satisfactory inter-rater reliability (n = 9: .30–1.00; n = 3: 85%–100%).Discussion: Calibrating and adjustments to the instructions and item set appeared to be crucial to reliably score 12 items in adults with PIMD. Further research should focus on creating an assessment instrument based on these reliably scored items.",

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AU - van der Putten, A. A. J.

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N2 - Background: Persons with profound intellectual and multiple disabilities (PIMD) are vulnerable when it comes to experiencing pain. Reliable assessment of pain-related behaviour in these persons is difficult. Aim To determine how pain items can be reliably scored in adults with PIMD.Methods: We developed an instruction protocol for the assessment of pain-related behaviour in four phases. We used videos of 57 adults with PIMD during potentially painful situations. The items were assessed for inter-rater reliability (Cohen's kappa or percentage of agreement).Results: The developed instruction protocol appeared to be adequate. Twelve items had satisfactory inter-rater reliability (n = 9: .30–1.00; n = 3: 85%–100%).Discussion: Calibrating and adjustments to the instructions and item set appeared to be crucial to reliably score 12 items in adults with PIMD. Further research should focus on creating an assessment instrument based on these reliably scored items.

AB - Background: Persons with profound intellectual and multiple disabilities (PIMD) are vulnerable when it comes to experiencing pain. Reliable assessment of pain-related behaviour in these persons is difficult. Aim To determine how pain items can be reliably scored in adults with PIMD.Methods: We developed an instruction protocol for the assessment of pain-related behaviour in four phases. We used videos of 57 adults with PIMD during potentially painful situations. The items were assessed for inter-rater reliability (Cohen's kappa or percentage of agreement).Results: The developed instruction protocol appeared to be adequate. Twelve items had satisfactory inter-rater reliability (n = 9: .30–1.00; n = 3: 85%–100%).Discussion: Calibrating and adjustments to the instructions and item set appeared to be crucial to reliably score 12 items in adults with PIMD. Further research should focus on creating an assessment instrument based on these reliably scored items.

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KW - ernstige meervoudige beperkingen

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KW - adults with PIMD

KW - instruction protocol

KW - pain assessment

KW - profound intellectual and multiple disabilities

KW - reliability

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Reliable assessment of pain behaviour in adults with profound intellectual and multiple disabilities: The development of an instruction protocol

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Keywords

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