Involving Adult Siblings in the Lives of Individuals With Pervasive Support Needs: Attitudes of Healthcare Professionals

Naomi  Dorsman; Jorien Luijkx; Cees van der Schans; Annette Van der Putten; Aly Waninge

doi:10.1111/jar.70139

Involving Adult Siblings in the Lives of Individuals With Pervasive Support Needs: Attitudes of Healthcare Professionals

Vertaalde titel van de bijdrage: Volwassen broers en zussen betrekken bij het leven van personen met uitgebreide ondersteuningsbehoeften: houding van gezondheidszorgprofessionals

Naomi Dorsman, Jorien Luijkx, Cees van der Schans, Annette Van der Putten, Aly Waninge

University of Groningen, Department of Inclusive and Special Needs Education
University of Groningen, University Medical Center Groningen, Department of Health Psychology
Rijksuniversiteit Groningen, Universitair Medisch Centrum Groningen, Centrum voor Revalidatie

Onderzoeksoutput: Article › Academic › peer review

Samenvatting

Achtergrond: Het is belangrijk om volwassen broers en zussen te betrekken bij personen met intensieve ondersteuningsbehoeften. Deze studie onderzoekt de houding van zorgprofessionals in dit proces.
Methode: De houding van zorgprofessionals (n=60) in Nederland werd onderzocht door middel van een online, zelf ontwikkelde enquête met open en gesloten vragen.
Resultaten: Ongeveer 40% van de deelnemers gaf aan (gedeeltelijk) onvoldoende kennis te hebben over de voorkeuren van broers en zussen en 23% gaf aan (gedeeltelijk) onvoldoende praktische mogelijkheden te hebben om broers en zussen te betrekken. De meerderheid (deels) beschouwde de betrokkenheid van broers en zussen als een plezierig onderdeel van hun werk (82%), beoordeelde hun kennis en vaardigheden positief (87%) en vond de betrokkenheid van broers en zussen zo belangrijk dat ze bereid waren om zich daarvoor aanzienlijk in te spannen (61%). Niet alle deelnemers beschouwden het als hun taak om samen te werken.
Conclusies: Er is behoefte aan meer kennis bij zorgprofessionals over de voorkeuren van volwassen broers en zussen en aan een structurele integratie van de betrokkenheid van broers en zussen in de zorgpraktijk.

Vertaalde titel van de bijdrage	Volwassen broers en zussen betrekken bij het leven van personen met uitgebreide ondersteuningsbehoeften: houding van gezondheidszorgprofessionals
Originele taal-2	English
Pagina's (van-tot)	11
Tijdschrift	Journal of Applied Research in Intellectual Disabilities
Volume	38
Nummer van het tijdschrift	5
DOI's	https://doi.org/10.1111/jar.70139
Status	Published - 14 okt. 2025

Keywords

PID
PIMD
alomtegenwoordige ondersteuningsbehoeften
broers of zussen
houdingen
professionals
samenwerking

Research Focus Areas Hanze University of Applied Sciences

Healthy Ageing

Research Focus Areas Research Centre or Centre of Expertise

Kwetsbaarheid en passende zorg

Publinova thema's

Recreatie, Beweging & Sport
Gezondheid
Mens en Maatschappij

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10.1111/jar.70139Licentie: CC BY

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title = "Involving Adult Siblings in the Lives of Individuals With Pervasive Support Needs: Attitudes of Healthcare Professionals",

abstract = "Background: Facilitating adult sibling involvement for individuals with pervasive support needs is important. This study explores the attitudes of healthcare professionals in this process. Method: The attitudes of healthcare professionals (n = 60) in the Netherlands were explored through an online, self-developed survey with open and closed-ended questions. Results: Around 40\% of the participants reported (partly) lacking knowledge about sibling preferences and 23\% (partly) lacking practical opportunities for involving siblings. The majority (partly) perceived the involvement of siblings as an enjoyable part of their work (82\%), rated their knowledge and skills positively (87\%), and regarded sibling involvement as such importance that they would be willing to exert considerable effort to contribute to it (61\%). Not all participants perceived it as their job to collaborate with siblings. Conclusions: There is a need to increase healthcare professionals' knowledge about adult sibling preferences and structurally embed sibling involvement within care practices.",

keywords = "PID, PIMD, alomtegenwoordige ondersteuningsbehoeften, broers of zussen, houdingen, professionals, samenwerking, PID, PIMD, attitudes, collaboration, pervasive support needs, professionals, siblings",

author = "Naomi Dorsman and Jorien Luijkx and \{van der Schans\}, Cees and \{Van der Putten\}, Annette and Aly Waninge",

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AU - Dorsman, Naomi

AU - Luijkx, Jorien

AU - van der Schans, Cees

AU - Van der Putten, Annette

AU - Waninge, Aly

PY - 2025/10/14

Y1 - 2025/10/14

N2 - Background: Facilitating adult sibling involvement for individuals with pervasive support needs is important. This study explores the attitudes of healthcare professionals in this process. Method: The attitudes of healthcare professionals (n = 60) in the Netherlands were explored through an online, self-developed survey with open and closed-ended questions. Results: Around 40% of the participants reported (partly) lacking knowledge about sibling preferences and 23% (partly) lacking practical opportunities for involving siblings. The majority (partly) perceived the involvement of siblings as an enjoyable part of their work (82%), rated their knowledge and skills positively (87%), and regarded sibling involvement as such importance that they would be willing to exert considerable effort to contribute to it (61%). Not all participants perceived it as their job to collaborate with siblings. Conclusions: There is a need to increase healthcare professionals' knowledge about adult sibling preferences and structurally embed sibling involvement within care practices.

AB - Background: Facilitating adult sibling involvement for individuals with pervasive support needs is important. This study explores the attitudes of healthcare professionals in this process. Method: The attitudes of healthcare professionals (n = 60) in the Netherlands were explored through an online, self-developed survey with open and closed-ended questions. Results: Around 40% of the participants reported (partly) lacking knowledge about sibling preferences and 23% (partly) lacking practical opportunities for involving siblings. The majority (partly) perceived the involvement of siblings as an enjoyable part of their work (82%), rated their knowledge and skills positively (87%), and regarded sibling involvement as such importance that they would be willing to exert considerable effort to contribute to it (61%). Not all participants perceived it as their job to collaborate with siblings. Conclusions: There is a need to increase healthcare professionals' knowledge about adult sibling preferences and structurally embed sibling involvement within care practices.

KW - PID

KW - PIMD

KW - alomtegenwoordige ondersteuningsbehoeften

KW - broers of zussen

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KW - professionals

KW - samenwerking

KW - PID

KW - PIMD

KW - attitudes

KW - collaboration

KW - pervasive support needs

KW - professionals

KW - siblings

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Involving Adult Siblings in the Lives of Individuals With Pervasive Support Needs: Attitudes of Healthcare Professionals

Samenvatting

Keywords

Research Focus Areas Hanze University of Applied Sciences

Research Focus Areas Research Centre or Centre of Expertise

Publinova thema's

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