Family Resilience Affecting Well-Being of Families With a Child With Profound Intellectual and Multiple Disabilities

S.T.A.  Lahaije; Jorien Luijkx; Aly Waninge; Annette Van der Putten

doi:10.1352/1934-9556-62.2.101

Family Resilience Affecting Well-Being of Families With a Child With Profound Intellectual and Multiple Disabilities

Vertaalde titel van de bijdrage: Veerkracht van het gezin beïnvloedt het welzijn van gezinnen met een kind met ernstige verstandelijke en meervoudige beperkingen

S.T.A. Lahaije, Jorien Luijkx, Aly Waninge, Annette Van der Putten

Participatie en gezondheid van mensen met een verstandelijke en visuele beperking

Rijksuniversiteit Groningen, Faculteit Gedrags-en Maatschappijwetenschappen, Inclusief Onderwijs

Onderzoeksoutput: Article › Academic › peer review

Samenvatting

Personen met ernstige verstandelijke en meervoudige beperkingen (PIMD) hebben veel ondersteuningsbehoeften, die door hun familie moeten worden ingevuld. Door veerkrachtig te zijn, kunnen gezinnen zich positief aanpassen aan deze uitdaging en een positieve FQOL behouden. Daarom wilden we begrijpen hoe gezinnen met een kind met PIMD hun veerkracht ervaren en of en hoe dit hun welzijn beïnvloedt. Deelnemers waren 64 ouders van een persoon met PIMD uit 44 gezinnen. Zowel de totale veerkracht van het gezin als de meeste subschalen werden goed gescoord, en hadden ook een significant positief effect op FQOL. Deze resultaten bieden meer inzicht in de gezinsdynamiek van gezinnen met een kind met PIMD, wat het beleid en de dienstverlening voor deze gezinnen ten goede zou moeten komen.

Vertaalde titel van de bijdrage	Veerkracht van het gezin beïnvloedt het welzijn van gezinnen met een kind met ernstige verstandelijke en meervoudige beperkingen
Originele taal-2	English
Artikelnummer	2
Pagina's (van-tot)	101-113
Aantal pagina's	12
Tijdschrift	Intellectual and Developmental Disabilities
Volume	62
Nummer van het tijdschrift	2
DOI's	https://doi.org/10.1352/1934-9556-62.2.101
Status	Published - 28 mrt. 2024

Keywords

ernstige verstandelijke en meervoudige beperkingen
handicaps
veerkracht van gezinnen
welzijn van het gezin
zorgbelasting

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10.1352/1934-9556-62.2.101

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title = "Family Resilience Affecting Well-Being of Families With a Child With Profound Intellectual and Multiple Disabilities",

abstract = "Persons with profound intellectual and multiple disabilities (PIMD) have pervasive support needs, which are often managed by their families. By being resilient and positively adapting to this challenge, families may maintain a positive family quality of life (FQOL). We therefore aimed to understand how families with a child with PIMD experience their family resilience, and if and how it affects their FQOL. Participants were 64 parents of a person with PIMD from 44 families. Total family resilience, as well as most subscales received positive scores, and also had a significant positive effect on FQOL. These results provide more insight into the family dynamics of families with a child with PIMD, which should inform policies, and provided services for these families.",

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author = "S.T.A. Lahaije and Jorien Luijkx and Aly Waninge and {Van der Putten}, Annette",

year = "2024",

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doi = "10.1352/1934-9556-62.2.101",

language = "English",

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AU - Lahaije, S.T.A.

AU - Luijkx, Jorien

AU - Waninge, Aly

AU - Van der Putten, Annette

PY - 2024/3/28

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AB - Persons with profound intellectual and multiple disabilities (PIMD) have pervasive support needs, which are often managed by their families. By being resilient and positively adapting to this challenge, families may maintain a positive family quality of life (FQOL). We therefore aimed to understand how families with a child with PIMD experience their family resilience, and if and how it affects their FQOL. Participants were 64 parents of a person with PIMD from 44 families. Total family resilience, as well as most subscales received positive scores, and also had a significant positive effect on FQOL. These results provide more insight into the family dynamics of families with a child with PIMD, which should inform policies, and provided services for these families.

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KW - veerkracht van gezinnen

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KW - care load

KW - disability

KW - family resilience

KW - family well-being

KW - profound intellectual and multiple disabilities

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DO - 10.1352/1934-9556-62.2.101

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Family Resilience Affecting Well-Being of Families With a Child With Profound Intellectual and Multiple Disabilities

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Keywords

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