Development and validation of MyCommunication-Youth: a self-report measure for communicative participation in children, adolescents and young adults

BACKGROUND: Communicative participation is the most important outcome of speech and language therapy, but there are no measurement instruments for children, adolescents, and young adults. This paper describes the development of MyCommunication-Youth: an item bank to measure self-reported communicative participation in children, adolescents and young adults with various communication disorders.

AIMS: 1) To develop a comprehensive, comprehensible item bank for measuring communicative participation in children, adolescents, and young adults with communication problems. 2) To assess the content validity of the item bank in a sample of these groups. 3) To define criteria for the minimal age at which children with communication difficulties can self-report their communicative participation.

METHOD: Based on a literature review and two concept elicitation studies three initial versions of item pools were developed: one for children, one for adolescents and one for young adults. These pools were pilot tested, using cognitive debriefing interviews, on comprehensibility and comprehensiveness in a diverse group of participants with communication difficulties, whereafter a second version of the item pools were created. Hereafter, the content validity was assessed in the target population and in a group of speech and language therapists.

RESULTS: Initially, three item pools were created for children (58 items), adolescents (78 items), and young adults (84 items). In the pilot test with 33 children adolescents and young adults with communication difficulties, items were revised for comprehensibility, some items were added for comprehensiveness, and some items were deleted because they appeared irrelevant, resulting in updated pools of 50, 69, and 72 items. In the content validity study, cognitive interviews with 27 participants and a focus group with 8 professionals identified additional revisions. Most items were comprehensible, but some were irrelevant for specific subpopulations of communication difficulties. Two new items were added after the input of professionals, whereafter the item bank was found comprehensive.

CONCLUSIONS: MyCommunication-Youth is an item bank for measuring communicative participation in children, adolescents and young adults with various communication difficulties. Three versions of the instrument were created: MyCommunication-Children of 49 items, MyCommunication-Adolescents of 70 items and MyCommunication-YoungAdults of 73 items. The item bank is comprehensible, relevant and comprehensive according to the target population and target professionals.