Validation of the ICF core set for neuromuscular diseases

I. Bos, Gonda Stallinga, B. Middel, J.B. Kuks, Klaske Wynia

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

BACKGROUND: Understanding of the consequences of a neuromuscular disease (NMD) can improve when a valid sample of disease-specific categories based on the International Classification of Functioning, Disabilities, and Health (ICF) is available.
OBJECTIVE: To examine the content validity of the initial ICF Core Set for neuromuscular diseases (NMDs). The initial ICF Core Set was developed for three chronic neurological diseases.
DESIGN: A qualitative method.
METHODS: To examine the content validity of the initial ICF Core Set for NMD, concepts in established disease-specific health-related Quality of Life Questionnaires (HRQOL) were compared with ICF categories. Next, the selected ICF categories were linked to the ICF categories in the initial ICF Core Set.
RESULTS: All concepts in the HRQOL questionnaires, except one body function concept, were covered by the initial ICF Core Set. However, the NMD Core Set reflects a broader scope concerning health problems than the concepts in the HRQOL questionnaires do, especially concerning the "Participation" and "Environmental Factors" components.
CONCLUSION: The NMD Core Set, as well as a measurement based on this Core Set, can contribute to a better understanding of the consequences of NMDs and can also serve as a basis for clinical practice, research, social security systems, and educational programs.
CLINICAL REHABILITATION IMPACT: The newly developed NMD Core Set can be a basis for enhancing the development of rehabilitation interventions and improving overall health care for patients with a NMD.

Original languageEnglish
Pages (from-to)179-187
JournalEuropean journal of physical and rehabilitation medicine
Volume49
Issue number2
Publication statusPublished - 2013

Keywords

  • neuromuscular diseases
  • classification

Cite this

Bos, I., Stallinga, G., Middel, B., Kuks, J. B., & Wynia, K. (2013). Validation of the ICF core set for neuromuscular diseases. European journal of physical and rehabilitation medicine, 49(2), 179-187.
Bos, I. ; Stallinga, Gonda ; Middel, B. ; Kuks, J.B. ; Wynia, Klaske. / Validation of the ICF core set for neuromuscular diseases. In: European journal of physical and rehabilitation medicine. 2013 ; Vol. 49, No. 2. pp. 179-187.
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Bos, I, Stallinga, G, Middel, B, Kuks, JB & Wynia, K 2013, 'Validation of the ICF core set for neuromuscular diseases' European journal of physical and rehabilitation medicine, vol. 49, no. 2, pp. 179-187.

Validation of the ICF core set for neuromuscular diseases. / Bos, I.; Stallinga, Gonda; Middel, B.; Kuks, J.B.; Wynia, Klaske.

In: European journal of physical and rehabilitation medicine, Vol. 49, No. 2, 2013, p. 179-187.

Research output: Contribution to journalArticleAcademicpeer-review

TY - JOUR

T1 - Validation of the ICF core set for neuromuscular diseases

AU - Bos, I.

AU - Stallinga, Gonda

AU - Middel, B.

AU - Kuks, J.B.

AU - Wynia, Klaske

PY - 2013

Y1 - 2013

N2 - BACKGROUND: Understanding of the consequences of a neuromuscular disease (NMD) can improve when a valid sample of disease-specific categories based on the International Classification of Functioning, Disabilities, and Health (ICF) is available.OBJECTIVE: To examine the content validity of the initial ICF Core Set for neuromuscular diseases (NMDs). The initial ICF Core Set was developed for three chronic neurological diseases.DESIGN: A qualitative method.METHODS: To examine the content validity of the initial ICF Core Set for NMD, concepts in established disease-specific health-related Quality of Life Questionnaires (HRQOL) were compared with ICF categories. Next, the selected ICF categories were linked to the ICF categories in the initial ICF Core Set.RESULTS: All concepts in the HRQOL questionnaires, except one body function concept, were covered by the initial ICF Core Set. However, the NMD Core Set reflects a broader scope concerning health problems than the concepts in the HRQOL questionnaires do, especially concerning the "Participation" and "Environmental Factors" components.CONCLUSION: The NMD Core Set, as well as a measurement based on this Core Set, can contribute to a better understanding of the consequences of NMDs and can also serve as a basis for clinical practice, research, social security systems, and educational programs.CLINICAL REHABILITATION IMPACT: The newly developed NMD Core Set can be a basis for enhancing the development of rehabilitation interventions and improving overall health care for patients with a NMD.

AB - BACKGROUND: Understanding of the consequences of a neuromuscular disease (NMD) can improve when a valid sample of disease-specific categories based on the International Classification of Functioning, Disabilities, and Health (ICF) is available.OBJECTIVE: To examine the content validity of the initial ICF Core Set for neuromuscular diseases (NMDs). The initial ICF Core Set was developed for three chronic neurological diseases.DESIGN: A qualitative method.METHODS: To examine the content validity of the initial ICF Core Set for NMD, concepts in established disease-specific health-related Quality of Life Questionnaires (HRQOL) were compared with ICF categories. Next, the selected ICF categories were linked to the ICF categories in the initial ICF Core Set.RESULTS: All concepts in the HRQOL questionnaires, except one body function concept, were covered by the initial ICF Core Set. However, the NMD Core Set reflects a broader scope concerning health problems than the concepts in the HRQOL questionnaires do, especially concerning the "Participation" and "Environmental Factors" components.CONCLUSION: The NMD Core Set, as well as a measurement based on this Core Set, can contribute to a better understanding of the consequences of NMDs and can also serve as a basis for clinical practice, research, social security systems, and educational programs.CLINICAL REHABILITATION IMPACT: The newly developed NMD Core Set can be a basis for enhancing the development of rehabilitation interventions and improving overall health care for patients with a NMD.

KW - neurofysiologie

KW - spierziekten

KW - classificatie

KW - neuromuscular diseases

KW - classification

M3 - Article

VL - 49

SP - 179

EP - 187

JO - European journal of physical and rehabilitation medicine

JF - European journal of physical and rehabilitation medicine

SN - 1973-9087

IS - 2

ER -