TY - JOUR
T1 - Reviewing the landscape of the decision-making process for pain assessment and management for people living with dementia
T2 - A systematic review
AU - Pu, Lihui
AU - Gamage, Madushika Kodagoda
AU - Li, Na
AU - Barton, Matthew
AU - Feenstra, Marlies
AU - Todorovic, Michael
AU - Moyle, Wendy
N1 - Copyright © 2024 The Author(s). Published by Elsevier Inc. All rights reserved.
PY - 2025/1
Y1 - 2025/1
N2 - AIM: To understand the steps in the decision-making process regarding pain assessment and management for people living with dementia from the perspectives and experiences of people with dementia, formal and informal carers.METHODS: A systematic review was conducted. Seven English databases were searched, including PubMed, Psychological Information Database, Cochrane Library, Scopus, Cumulative Index of Nursing and Allied Health Literature, Web of Science, and ProQuest, using synonyms and derivatives for "dementia", "cognitive impairment", "pain", "pain assessment", "pain management", "decision", "decision support", and "decision-making".RESULTS: Twenty-eight studies fulfilled the eligibility criteria. Pain assessment and management in dementia are complex, successive, and collaborative processes carried out by different individuals over a period based on one's understanding of the person with dementia but with high uncertainty. Pain assessment involves a certain degree of guesswork, while pain management is a trial-and-error process.CONCLUSION: More pragmatic approaches are needed to overcome challenges, including uncertainty and decisional conflicts.
AB - AIM: To understand the steps in the decision-making process regarding pain assessment and management for people living with dementia from the perspectives and experiences of people with dementia, formal and informal carers.METHODS: A systematic review was conducted. Seven English databases were searched, including PubMed, Psychological Information Database, Cochrane Library, Scopus, Cumulative Index of Nursing and Allied Health Literature, Web of Science, and ProQuest, using synonyms and derivatives for "dementia", "cognitive impairment", "pain", "pain assessment", "pain management", "decision", "decision support", and "decision-making".RESULTS: Twenty-eight studies fulfilled the eligibility criteria. Pain assessment and management in dementia are complex, successive, and collaborative processes carried out by different individuals over a period based on one's understanding of the person with dementia but with high uncertainty. Pain assessment involves a certain degree of guesswork, while pain management is a trial-and-error process.CONCLUSION: More pragmatic approaches are needed to overcome challenges, including uncertainty and decisional conflicts.
KW - pain assessment
KW - pain management
KW - dementia
KW - decision making
KW - pijnbeoordeling
KW - pijnbeheersing
KW - dementie
KW - besluitvorming
UR - https://www.mendeley.com/catalogue/0bd07f82-9a7a-3e52-a00f-78eab87e72f0/
U2 - 10.1016/j.gerinurse.2024.10.047
DO - 10.1016/j.gerinurse.2024.10.047
M3 - Article
C2 - 39541632
SN - 0197-4572
VL - 61
SP - 50
EP - 63
JO - Geriatric Nursing
JF - Geriatric Nursing
ER -