Outcomes that matter most to burn patients: a national multicentre survey study in the Netherlands

Dutch Burn Care, Education & Research group

doi:10.1016/j.burns.2023.10.018

Outcomes that matter most to burn patients: a national multicentre survey study in the Netherlands

Dutch Burn Care, Education & Research group

Functional recovery and quality of life after burns

Department of Public Health, Erasmus Medical Centre
Association of Dutch Burn Centres, Burn Centre, Maasstad Hospital
Dutch Burns Foundation
Association of Dutch Burn Centers
University of Groningen, University Medical Center Groningen, Department of Human Movement Sciences
Association of Dutch Burn Centres, Burn Centre, Red Cross Hospital
Amsterdam UMC Location Vrije Universiteit, Department of Plastic, Reconstructive and Hand Surgery
Amsterdam Movement Sciences (AMS) Institute Amsterdam UMC
Dutch Association of Burn Survivors
Amsterdam UMC, Emma Children’s Hospital
The Hague University of Applied Sciences Faculty of Health Nutrition & Sport, Department of Dermal Therapy
The Hague University of Applied Sciences, Research Group Relational Care Centre of Expertise Health Innovation

Research output: Contribution to journal › Article › Academic › peer-review

Abstract

Background: The use of patient-reported outcomes to improve burn care increases. Little is known on burn patients’ views on what outcomes are most important, and about preferences regarding online Patient Reported Outcome Measures (PROMs). Therefore, this study assessed what outcomes matter most to patients, and gained insights into patient preferences towards the use of online PROMs. Methods: Adult patients (≥18 years old), 3–36 months after injury completed a survey measuring importance of outcomes, separately for three time periods: during admission, short-term (

Original language	English
Pages (from-to)	31-40
Number of pages	10
Journal	Burns : journal of the International Society for Burn Injuries
Volume	50
Issue number	1
Early online date	10 Nov 2023
DOIs	https://doi.org/10.1016/j.burns.2023.10.018
Publication status	Published - 26 Dec 2023

Keywords

burn care
burn patients
perception
recovery

Research Focus Areas Hanze University of Applied Sciences * (mandatory by Hanze)

Healthy Ageing

Research Focus Areas Research Centre or Centre of Expertise * (mandatory by Hanze)

Frailty and adequate care

Publinova themes

Other
Health

Access to Document

10.1016/j.burns.2023.10.018Licence: CC BY

Cite this

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title = "Outcomes that matter most to burn patients: a national multicentre survey study in the Netherlands",

abstract = "Background: The use of patient-reported outcomes to improve burn care increases. Little is known on burn patients{\textquoteright} views on what outcomes are most important, and about preferences regarding online Patient Reported Outcome Measures (PROMs). Therefore, this study assessed what outcomes matter most to patients, and gained insights into patient preferences towards the use of online PROMs. Methods: Adult patients (≥18 years old), 3–36 months after injury completed a survey measuring importance of outcomes, separately for three time periods: during admission, short-term (",

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doi = "10.1016/j.burns.2023.10.018",

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T1 - Outcomes that matter most to burn patients

T2 - a national multicentre survey study in the Netherlands

AU - Dutch Burn Care, Education & Research group

AU - Spronk, I

AU - van Uden, D

AU - van Dammen, L

AU - van Baar, M E

AU - Nieuwenhuis, Marianne

AU - Pijpe, A

AU - Visser, I

AU - van Schie, C

AU - van Zuijlen, P

AU - Haanstra, T

AU - Lansdorp, C A

PY - 2023/12/26

Y1 - 2023/12/26

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KW - burn care

KW - burn patients

KW - perception

KW - recovery

KW - beleving

KW - brandwondenpatiënten

KW - brandwondenzorg

KW - herstel

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JO - Burns : journal of the International Society for Burn Injuries

JF - Burns : journal of the International Society for Burn Injuries

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Outcomes that matter most to burn patients: a national multicentre survey study in the Netherlands

Abstract

Keywords

Research Focus Areas Hanze University of Applied Sciences * (mandatory by Hanze)

Research Focus Areas Research Centre or Centre of Expertise * (mandatory by Hanze)

Publinova themes

Access to Document

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Cite this