Involving Adult Siblings in the Lives of Individuals With Pervasive Support Needs: Attitudes of Healthcare Professionals

Naomi Dorsman, Jorien Luijkx, Cees van der Schans, Annette Van der Putten, Aly Waninge

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Background: Facilitating adult sibling involvement for individuals with pervasive support needs is important. This study explores the attitudes of healthcare professionals in this process. Method: The attitudes of healthcare professionals (n = 60) in the Netherlands were explored through an online, self-developed survey with open and closed-ended questions. Results: Around 40% of the participants reported (partly) lacking knowledge about sibling preferences and 23% (partly) lacking practical opportunities for involving siblings. The majority (partly) perceived the involvement of siblings as an enjoyable part of their work (82%), rated their knowledge and skills positively (87%), and regarded sibling involvement as such importance that they would be willing to exert considerable effort to contribute to it (61%). Not all participants perceived it as their job to collaborate with siblings. Conclusions: There is a need to increase healthcare professionals' knowledge about adult sibling preferences and structurally embed sibling involvement within care practices.
Translated title of the contributionVolwassen broers en zussen betrekken bij het leven van personen met uitgebreide ondersteuningsbehoeften: houding van gezondheidszorgprofessionals
Original languageEnglish
Pages (from-to)11
JournalJournal of Applied Research in Intellectual Disabilities
Volume38
Issue number5
DOIs
Publication statusPublished - 14 Oct 2025

Keywords

  • PID
  • PIMD
  • attitudes
  • collaboration
  • pervasive support needs
  • professionals
  • siblings

Research Focus Areas Hanze University of Applied Sciences * (mandatory by Hanze)

  • Healthy Ageing

Research Focus Areas Research Centre or Centre of Expertise * (mandatory by Hanze)

  • Frailty and adequate care

Publinova themes

  • Recreation, Exercise and Sports
  • Health
  • People and Society

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