For better and for worse: quality of life impaired in HF patients as well as in their partners

Marie Louise Luttik, Tiny Jaarsma, Nic J G M Veeger, Dirk J van Veldhuisen

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

BACKGROUND: Quality of Life (QOL) is known to be impaired in patients with Heart Failure (HF). The involvement of a key person, most often the spouse, enables the HF patient to manage the medical regimen and therefore to sustain Quality of Life (QOL). Yet little is known on the impact of caring for an HF patient on the QOL of the caregiving partner. This study aims to explore the QOL of partners of HF patients compared to the QOL of the patients.

METHODS: The study population consisted of 38 couples of hospitalized HF patients and their partners. The Cantril Ladder of Life was used to rate QOL during hospitalization, with regard to the month prior to hospitalization and as projected 3 years in the future. Demographic and clinical variables were collected by patient interview and chart review.

RESULTS: On a scale from 0-10, QOL scores of partners varied from 5.9 to 6.4. At some point the QOL score of partners was even lower than the QOL scores of HF patients. In the month prior to hospital admission the QOL of partners was significantly higher in comparison to the QOL of HF patients (6.1 vs. 4.9, respectively). However, this reversed during hospital admission, with QOL scores of partners being significantly lower compared to QOL scores of HF patients (5.9 vs. 6.8, respectively), even after correcting for age and gender.

CONCLUSION: In our study the QOL of partners of HF patients was low. Whether this is explicitly due to having to live with a HF patient is not clear. Further research on what partners actually do and the relationship between being a caregiver and QOL is necessary in order to support these partners in giving optimal care and support.

Original languageEnglish
Pages (from-to)11-14
JournalEuropean journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology
Volume4
Issue number1
DOIs
Publication statusPublished - Mar 2005
Externally publishedYes

Keywords

  • heart failure
  • hospitals, university
  • netherlands
  • nursing
  • quality of life
  • social support
  • spouses

Cite this

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title = "For better and for worse: quality of life impaired in HF patients as well as in their partners",
abstract = "BACKGROUND: Quality of Life (QOL) is known to be impaired in patients with Heart Failure (HF). The involvement of a key person, most often the spouse, enables the HF patient to manage the medical regimen and therefore to sustain Quality of Life (QOL). Yet little is known on the impact of caring for an HF patient on the QOL of the caregiving partner. This study aims to explore the QOL of partners of HF patients compared to the QOL of the patients.METHODS: The study population consisted of 38 couples of hospitalized HF patients and their partners. The Cantril Ladder of Life was used to rate QOL during hospitalization, with regard to the month prior to hospitalization and as projected 3 years in the future. Demographic and clinical variables were collected by patient interview and chart review.RESULTS: On a scale from 0-10, QOL scores of partners varied from 5.9 to 6.4. At some point the QOL score of partners was even lower than the QOL scores of HF patients. In the month prior to hospital admission the QOL of partners was significantly higher in comparison to the QOL of HF patients (6.1 vs. 4.9, respectively). However, this reversed during hospital admission, with QOL scores of partners being significantly lower compared to QOL scores of HF patients (5.9 vs. 6.8, respectively), even after correcting for age and gender.CONCLUSION: In our study the QOL of partners of HF patients was low. Whether this is explicitly due to having to live with a HF patient is not clear. Further research on what partners actually do and the relationship between being a caregiver and QOL is necessary in order to support these partners in giving optimal care and support.",
keywords = "heart failure, hospitals, university, netherlands, nursing , quality of life, social support, spouses, adaptatie, psychologisch, bejaard, gezondheidsattitude, zorgverleners, ziektekosten, vrouwelijk, gezonheidsstatus, hartfalen, ziekenhuizen, universiteit, mensen, intern verpleegd pati{\"e}nt, mannelijk, middelbaar, multivariabele analyse, nederland, nursing methodology research, kwaliteit van leven, severe of illness index, sociale steun, echtgenoten, vragenlijsten en enqu{\^e}tes, vergelijkend onderzoek, tijdchrijftartikel, research support, non-U.S. Gov't",
author = "Luttik, {Marie Louise} and Tiny Jaarsma and Veeger, {Nic J G M} and {van Veldhuisen}, {Dirk J}",
year = "2005",
month = "3",
doi = "10.1016/j.ejcnurse.2004.12.002",
language = "English",
volume = "4",
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journal = "European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology",
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}

For better and for worse : quality of life impaired in HF patients as well as in their partners. / Luttik, Marie Louise; Jaarsma, Tiny; Veeger, Nic J G M; van Veldhuisen, Dirk J.

In: European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology, Vol. 4, No. 1, 03.2005, p. 11-14.

Research output: Contribution to journalArticleAcademicpeer-review

TY - JOUR

T1 - For better and for worse

T2 - quality of life impaired in HF patients as well as in their partners

AU - Luttik, Marie Louise

AU - Jaarsma, Tiny

AU - Veeger, Nic J G M

AU - van Veldhuisen, Dirk J

PY - 2005/3

Y1 - 2005/3

N2 - BACKGROUND: Quality of Life (QOL) is known to be impaired in patients with Heart Failure (HF). The involvement of a key person, most often the spouse, enables the HF patient to manage the medical regimen and therefore to sustain Quality of Life (QOL). Yet little is known on the impact of caring for an HF patient on the QOL of the caregiving partner. This study aims to explore the QOL of partners of HF patients compared to the QOL of the patients.METHODS: The study population consisted of 38 couples of hospitalized HF patients and their partners. The Cantril Ladder of Life was used to rate QOL during hospitalization, with regard to the month prior to hospitalization and as projected 3 years in the future. Demographic and clinical variables were collected by patient interview and chart review.RESULTS: On a scale from 0-10, QOL scores of partners varied from 5.9 to 6.4. At some point the QOL score of partners was even lower than the QOL scores of HF patients. In the month prior to hospital admission the QOL of partners was significantly higher in comparison to the QOL of HF patients (6.1 vs. 4.9, respectively). However, this reversed during hospital admission, with QOL scores of partners being significantly lower compared to QOL scores of HF patients (5.9 vs. 6.8, respectively), even after correcting for age and gender.CONCLUSION: In our study the QOL of partners of HF patients was low. Whether this is explicitly due to having to live with a HF patient is not clear. Further research on what partners actually do and the relationship between being a caregiver and QOL is necessary in order to support these partners in giving optimal care and support.

AB - BACKGROUND: Quality of Life (QOL) is known to be impaired in patients with Heart Failure (HF). The involvement of a key person, most often the spouse, enables the HF patient to manage the medical regimen and therefore to sustain Quality of Life (QOL). Yet little is known on the impact of caring for an HF patient on the QOL of the caregiving partner. This study aims to explore the QOL of partners of HF patients compared to the QOL of the patients.METHODS: The study population consisted of 38 couples of hospitalized HF patients and their partners. The Cantril Ladder of Life was used to rate QOL during hospitalization, with regard to the month prior to hospitalization and as projected 3 years in the future. Demographic and clinical variables were collected by patient interview and chart review.RESULTS: On a scale from 0-10, QOL scores of partners varied from 5.9 to 6.4. At some point the QOL score of partners was even lower than the QOL scores of HF patients. In the month prior to hospital admission the QOL of partners was significantly higher in comparison to the QOL of HF patients (6.1 vs. 4.9, respectively). However, this reversed during hospital admission, with QOL scores of partners being significantly lower compared to QOL scores of HF patients (5.9 vs. 6.8, respectively), even after correcting for age and gender.CONCLUSION: In our study the QOL of partners of HF patients was low. Whether this is explicitly due to having to live with a HF patient is not clear. Further research on what partners actually do and the relationship between being a caregiver and QOL is necessary in order to support these partners in giving optimal care and support.

KW - heart failure

KW - hospitals, university

KW - netherlands

KW - nursing

KW - quality of life

KW - social support

KW - spouses

KW - adaptatie, psychologisch

KW - bejaard

KW - gezondheidsattitude

KW - zorgverleners

KW - ziektekosten

KW - vrouwelijk

KW - gezonheidsstatus

KW - hartfalen

KW - ziekenhuizen, universiteit

KW - mensen

KW - intern verpleegd patiënt

KW - mannelijk

KW - middelbaar

KW - multivariabele analyse

KW - nederland

KW - nursing methodology research

KW - kwaliteit van leven

KW - severe of illness index

KW - sociale steun

KW - echtgenoten

KW - vragenlijsten en enquêtes

KW - vergelijkend onderzoek

KW - tijdchrijftartikel

KW - research support, non-U.S. Gov't

U2 - 10.1016/j.ejcnurse.2004.12.002

DO - 10.1016/j.ejcnurse.2004.12.002

M3 - Article

VL - 4

SP - 11

EP - 14

JO - European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology

JF - European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology

SN - 1474-5151

IS - 1

ER -