Abstract
Persons with profound intellectual and multiple disabilities (PIMD) have pervasive support needs, which are often managed by their families. By being resilient and positively adapting to this challenge, families may maintain a positive family quality of life (FQOL). We therefore aimed to understand how families with a child with PIMD experience their family resilience, and if and how it affects their FQOL. Participants were 64 parents of a person with PIMD from 44 families. Total family resilience, as well as most subscales received positive scores, and also had a significant positive effect on FQOL. These results provide more insight into the family dynamics of families with a child with PIMD, which should inform policies, and provided services for these families.
Translated title of the contribution | Veerkracht van het gezin beïnvloedt het welzijn van gezinnen met een kind met ernstige verstandelijke en meervoudige beperkingen |
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Original language | English |
Article number | 2 |
Pages (from-to) | 101-113 |
Number of pages | 12 |
Journal | Intellectual and Developmental Disabilities |
Volume | 62 |
Issue number | 2 |
DOIs | |
Publication status | Published - 28 Mar 2024 |
Keywords
- care load
- disability
- family resilience
- family well-being
- profound intellectual and multiple disabilities