Effects of the “Care for Participation+” Intervention on the Participation of Adults With Visual and Severe or Profound Intellectual Disabilities: A Nonrandomized Controlled Trial

G. J. Hanzen (First author), Aly Waninge, R.M.A. Van Nispen, Carla Vlaskamp, A.A.J. Van der Putten

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Background
The “Care for Participation+” (CFP+) intervention was developed in order to change the attitudes of direct support professionals (DSPs) regarding the participation of adults with visual and severe or profound ID (VSPID).

Aims
The aim of this study was to evaluate the effects of CFP+ on the participation of the target group.

Methods
We performed a pilot nonrandomized controlled trial with three arms. The effect of CFP+ on participation was compared to a usual care control group (n = 13), and a control group in which one element of CFP+ was implemented (n = 14). Participation was measured using specific domains of the Quality Of Life of People with Profound Multiple Disabilities (QOL-PMD) questionnaire that was completed by the legal representatives and DSPs of adults with VSPID, and video-observations of (initiatives for prompting) active involvement within 10 dyads comprising adults with VSPID and DSPs.

Findings
The effects of CFP+ on the QOL-PMD were very small and not statistically significant. Qualitative analyses showed that in the CFP+ group, active involvement in activities of adults with VSPID and number of DSPs' initiatives to stimulate active involvement exceeded those within the two control groups.
Original languageEnglish
Pages (from-to)1-18
JournalJournal of Policy and Practice in Intellectual Disabilities
DOIs
Publication statusPublished - 27 Sep 2021

Keywords

  • involvement
  • participation
  • quality of life
  • severe or profound intellectual disabilities
  • visual disability

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