Abstract
BACKGROUND Families with a child with profound intellectual and multiple disabilities have to manage the pervasive support needs of their child, which is a complex task. By properly supporting them, we can ensure these families live a positive and meaningful life. METHOD A product to support these families was developed using the method of Design Thinking, which included parents filling out three different questionnaires. RESULTS It was found that parents preferred to be supported in strengthening their resilience and care capacity, specifically by improving the communication and (mutual) understanding between them and municipal government employees. An online training course for government employees was subsequently developed. CONCLUSIONS This study has led to the development of a product that can support families with a child with profound intellectual and multiple disabilities according to their needs and preferences. This study has also provided insights into how these parents prefer to be supported.
| Translated title of the contribution | Ontwikkeling van een online trainingscursus voor overheidsmedewerkers om gezinnen met een kind met ernstige verstandelijke en meervoudige beperkingen te ondersteunen |
|---|---|
| Original language | English |
| Article number | e70039 |
| Number of pages | 11 |
| Journal | Journal of Applied Research in Intellectual Disabilities |
| Volume | 38 |
| Issue number | 2 |
| DOIs | |
| Publication status | Published - 25 Mar 2025 |
Keywords
- design thinking
- disability
- family support
- family well-being
- profound intellectual and multiple disabilities
- service delivery
Research Focus Areas Hanze University of Applied Sciences * (mandatory by Hanze)
- Healthy Ageing
Research Focus Areas Research Centre or Centre of Expertise * (mandatory by Hanze)
- Healthy lifestyle and living environment
- Frailty and adequate care
Publinova themes
- Other
- Recreation, Exercise and Sports
- Health
- People and Society