Dementia in People with Severe/Profound Intellectual (and Multiple) Disabilities:: Applicability of Items in Dementia Screening Instruments for People with Intellectual Disabilities

Maureen Wissing; Roos Dijkstra; Ina A. van der Wal; Esther S.  Grootendorst; Johannes Hobbelen; Annette A. J. van der Putten; Peter Paul De Deyn; Aly Waninge; Alain D. Dekker

doi:10.1080/19315864.2022.2111737

Dementia in People with Severe/Profound Intellectual (and Multiple) Disabilities: Applicability of Items in Dementia Screening Instruments for People with Intellectual Disabilities

Maureen Wissing
, Roos Dijkstra
, Ina A. van der Wal
, Esther S. Grootendorst
, Johannes Hobbelen
, Annette A. J. van der Putten
, Peter Paul De Deyn
, Aly Waninge
, Alain D. Dekker

Department of Practice-Oriented Scientific Research (PWO)
Ipse de Bruggen
University of Groningen, Faculty of Behavioural and Social Sciences, Pedagogical and Educational Sciences, Department of Special Needs Education and Youth Care
University of Groningen, Basiseenheden Orthopedagogiek
University of Groningen, Faculty of Behavioural and Social Sciences, Pedagogical Sciences, Orthopedagogiek
University of Groningen, University Medical Center Groningen, Alzheimer Research Center
University of Groningen, University Medical Center Groningen, Department of Health Science, Health Psychology Section

Research output: Contribution to journal › Article › Academic › peer-review

246 Downloads (Pure)

Abstract

Introduction: Diagnosing dementia in people with severe/profound intellectual (and multiple) disabilities (SPI(M)D) is complex. Whereas existing dementia screening instruments as a whole are unsuitable for this population, a number of individual items may apply. Therefore, this study aimed to identify applicable items in existing dementia screening instruments. Methods: Informant interviews about 40 people with SPI(M)D were conducted to identify applicable items in the Dementia Scale for Down Syndrome, Behavioral and Psychological Symptoms of Dementia in Down Syndrome II scale, Dementia Questionnaire for persons with Mental Retardation and Social competence Rating scale for people with Intellectual Disabilities. Results: Among 193 items, 101 items were found applicable, categorized in 5 domains: behavioral and psychological functioning (60 items), cognitive functioning (25), motor functioning (6), activities of daily living (5) and medical comorbidities (5). Conclusion: Identifying applicable items for people with SPI(M)D is an essential step in developing a dedicated dementia screening instrument for this population.

Original language	English
Pages (from-to)	322-363
Number of pages	42
Journal	Journal of Mental Health Research in Intellectual Disabilities
Volume	15
Issue number	4
DOIs	https://doi.org/10.1080/19315864.2022.2111737
Publication status	Published - 29 Aug 2022

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 03 Good Health and Well-being

Keywords

dementia
intellectual disabilities
down syndrome
severe intellectual disabilities
profound intellectual disabilities
multiple disabilities
screening instruments

Research Focus Areas Hanze University of Applied Sciences * (mandatory by Hanze)

Healthy Ageing

Research Focus Areas Research Centre or Centre of Expertise * (mandatory by Hanze)

Healthy lifestyle and living environment
Frailty and adequate care

Publinova themes

Other
Health
Recreation, Exercise and Sports
People and Society

Access to Document

10.1080/19315864.2022.2111737

2022_Wissing_Dementia_in_SPIMD Applicability of Items in Dementia Screening InstrumentsFinal published version, 1.58 MB

Cite this

Wissing, M., Dijkstra, R., van der Wal, I. A., Grootendorst, E. S., Hobbelen, J., van der Putten, A. A. J., De Deyn, P. P., Waninge, A., & Dekker, A. D. (2022). Dementia in People with Severe/Profound Intellectual (and Multiple) Disabilities: Applicability of Items in Dementia Screening Instruments for People with Intellectual Disabilities. Journal of Mental Health Research in Intellectual Disabilities, 15(4), 322-363. https://doi.org/10.1080/19315864.2022.2111737

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title = "Dementia in People with Severe/Profound Intellectual (and Multiple) Disabilities:: Applicability of Items in Dementia Screening Instruments for People with Intellectual Disabilities",

abstract = "Introduction: Diagnosing dementia in people with severe/profound intellectual (and multiple) disabilities (SPI(M)D) is complex. Whereas existing dementia screening instruments as a whole are unsuitable for this population, a number of individual items may apply. Therefore, this study aimed to identify applicable items in existing dementia screening instruments. Methods: Informant interviews about 40 people with SPI(M)D were conducted to identify applicable items in the Dementia Scale for Down Syndrome, Behavioral and Psychological Symptoms of Dementia in Down Syndrome II scale, Dementia Questionnaire for persons with Mental Retardation and Social competence Rating scale for people with Intellectual Disabilities. Results: Among 193 items, 101 items were found applicable, categorized in 5 domains: behavioral and psychological functioning (60 items), cognitive functioning (25), motor functioning (6), activities of daily living (5) and medical comorbidities (5). Conclusion: Identifying applicable items for people with SPI(M)D is an essential step in developing a dedicated dementia screening instrument for this population.",

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author = "Maureen Wissing and Roos Dijkstra and \{van der Wal\}, \{Ina A.\} and Grootendorst, \{Esther S.\} and Johannes Hobbelen and \{van der Putten\}, \{Annette A. J.\} and \{De Deyn\}, \{Peter Paul\} and Aly Waninge and Dekker, \{Alain D.\}",

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year = "2022",

month = aug,

day = "29",

doi = "10.1080/19315864.2022.2111737",

language = "English",

volume = "15",

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Wissing, M, Dijkstra, R, van der Wal, IA, Grootendorst, ES, Hobbelen, J, van der Putten, AAJ, De Deyn, PP, Waninge, A & Dekker, AD 2022, 'Dementia in People with Severe/Profound Intellectual (and Multiple) Disabilities: Applicability of Items in Dementia Screening Instruments for People with Intellectual Disabilities', Journal of Mental Health Research in Intellectual Disabilities, vol. 15, no. 4, pp. 322-363. https://doi.org/10.1080/19315864.2022.2111737

Dementia in People with Severe/Profound Intellectual (and Multiple) Disabilities: Applicability of Items in Dementia Screening Instruments for People with Intellectual Disabilities. / Wissing, Maureen; Dijkstra, Roos; van der Wal, Ina A. et al.
In: Journal of Mental Health Research in Intellectual Disabilities, Vol. 15, No. 4, 29.08.2022, p. 322-363.

Research output: Contribution to journal › Article › Academic › peer-review

TY - JOUR

T1 - Dementia in People with Severe/Profound Intellectual (and Multiple) Disabilities:

T2 - Applicability of Items in Dementia Screening Instruments for People with Intellectual Disabilities

AU - Wissing, Maureen

AU - Dijkstra, Roos

AU - van der Wal, Ina A.

AU - Grootendorst, Esther S.

AU - Hobbelen, Johannes

AU - van der Putten, Annette A. J.

AU - De Deyn, Peter Paul

AU - Waninge, Aly

AU - Dekker, Alain D.

PY - 2022/8/29

Y1 - 2022/8/29

N2 - Introduction: Diagnosing dementia in people with severe/profound intellectual (and multiple) disabilities (SPI(M)D) is complex. Whereas existing dementia screening instruments as a whole are unsuitable for this population, a number of individual items may apply. Therefore, this study aimed to identify applicable items in existing dementia screening instruments. Methods: Informant interviews about 40 people with SPI(M)D were conducted to identify applicable items in the Dementia Scale for Down Syndrome, Behavioral and Psychological Symptoms of Dementia in Down Syndrome II scale, Dementia Questionnaire for persons with Mental Retardation and Social competence Rating scale for people with Intellectual Disabilities. Results: Among 193 items, 101 items were found applicable, categorized in 5 domains: behavioral and psychological functioning (60 items), cognitive functioning (25), motor functioning (6), activities of daily living (5) and medical comorbidities (5). Conclusion: Identifying applicable items for people with SPI(M)D is an essential step in developing a dedicated dementia screening instrument for this population.

AB - Introduction: Diagnosing dementia in people with severe/profound intellectual (and multiple) disabilities (SPI(M)D) is complex. Whereas existing dementia screening instruments as a whole are unsuitable for this population, a number of individual items may apply. Therefore, this study aimed to identify applicable items in existing dementia screening instruments. Methods: Informant interviews about 40 people with SPI(M)D were conducted to identify applicable items in the Dementia Scale for Down Syndrome, Behavioral and Psychological Symptoms of Dementia in Down Syndrome II scale, Dementia Questionnaire for persons with Mental Retardation and Social competence Rating scale for people with Intellectual Disabilities. Results: Among 193 items, 101 items were found applicable, categorized in 5 domains: behavioral and psychological functioning (60 items), cognitive functioning (25), motor functioning (6), activities of daily living (5) and medical comorbidities (5). Conclusion: Identifying applicable items for people with SPI(M)D is an essential step in developing a dedicated dementia screening instrument for this population.

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KW - verstandelijke beperkingen

KW - ernstige verstandelijke beperkingen

KW - syndroom van down

KW - diepgaande verstandelijke beperkingen

KW - meervoudig gehandicapt

KW - screeningsinstrument

KW - dementia

KW - intellectual disabilities

KW - down syndrome

KW - severe intellectual disabilities

KW - profound intellectual disabilities

KW - multiple disabilities

KW - screening instruments

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DO - 10.1080/19315864.2022.2111737

M3 - Article

SN - 1931-5864

VL - 15

SP - 322

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JO - Journal of Mental Health Research in Intellectual Disabilities

JF - Journal of Mental Health Research in Intellectual Disabilities

IS - 4

ER -

Wissing M, Dijkstra R, van der Wal IA, Grootendorst ES, Hobbelen J, van der Putten AAJ et al. Dementia in People with Severe/Profound Intellectual (and Multiple) Disabilities: Applicability of Items in Dementia Screening Instruments for People with Intellectual Disabilities. Journal of Mental Health Research in Intellectual Disabilities. 2022 Aug 29;15(4):322-363. doi: 10.1080/19315864.2022.2111737