Abstract
Background: Objective assessment of pain-related behaviours is crucial in adults with profound intellectual and multiple disabilities. No standardised pain observation instrument that specifically focuses on this target group is currently available. A previous study identified 12 pain-related behaviours in these persons. This study aimed to develop a valid and reliable instrument based on these 12 pain-related behaviours to assess pain in these adults in daily situations. Method: Videos of 91 adults with profound intellectual and multiple disabilities in potentially painful daily situations were scored using the 12 pain-related behaviour items. Mokken scale analysis was used to determine the construct validity of these items. Results: Analysis resulted in a 9-item scale (H =.46, Rho =.70), which appeared to be sample independent for the variables of sex, age and level of motor functioning. Conclusion: A scale containing 9 items (APOS-PIMD) with reasonable construct validity and sufficient reliability was developed, which can be used to measure pain in adults with profound intellectual and multiple disabilities in daily situations.
| Translated title of the contribution | Constructvaliditeit van een pijnobservatieschaal voor volwassenen met een ernstige verstandelijke en meervoudige beperking : De APOS-PIMD |
|---|---|
| Original language | English |
| Number of pages | 10 |
| Journal | Journal of Intellectual and Developmental Disability |
| DOIs | |
| Publication status | Published - 29 Jul 2025 |
Keywords
- APOS-PIMD
- Mokken scale analysis;
- profound intellectual and multiple disabilities;
- pain observation scale
- validity
Research Focus Areas Hanze University of Applied Sciences * (mandatory by Hanze)
- Healthy Ageing
Research Focus Areas Research Centre or Centre of Expertise * (mandatory by Hanze)
- Healthy lifestyle and living environment
- Frailty and adequate care
Publinova themes
- Other
- Recreation, Exercise and Sports
- Health
- People and Society