Burden of caring: risks and consequences imposed on caregivers of those living and dying with advanced heart failure

Anna Strömberg, Marie Louise Luttik

Research output: Contribution to journalLiterature reviewAcademicpeer-review

Abstract

Purpose of review: To summarize the latest research on the risks and consequences of the burden that may be imposed on informal carers of persons living and dying with advanced heart failure.

Recent findings: A systematic search in PubMed over the period 2013–2014 ultimately revealed 24 original articles included in this review. From this research update it can be concluded that the body of knowledge increased with more studies focusing on caregivers of patients with advanced heart failure.

Summary: Caregivers are important partners in care and their lives are seriously affected by the condition of advanced heart failure. Studies on the longitudinal effects of the caregiving role on caregiver's quality of life and on caregiver contributions to patient outcomes is still scarce. Focus of current research is moving towards relationship aspects. Dyadic-care typologies and the concept of incongruence within dyads in terms of conflicting perspectives on how to manage the heart failure are new and important concepts presented in studies presented in this review. Heart failure patients and their caregivers still lack sufficient palliative care and communication on prognosis and end-of-life care. More research is needed to determine the optimal time to start palliative interventions to support caregivers of patients with advanced heart failure.
Original languageEnglish
Pages (from-to)26-30
JournalCurrent opinion in supportive & palliative care
Volume9
Issue number1
DOIs
Publication statusPublished - 1 Mar 2015

Keywords

  • caregiving
  • family care

Cite this

@article{18bf2045b233415bb6153c65495ae286,
title = "Burden of caring: risks and consequences imposed on caregivers of those living and dying with advanced heart failure",
abstract = "Purpose of review: To summarize the latest research on the risks and consequences of the burden that may be imposed on informal carers of persons living and dying with advanced heart failure.Recent findings: A systematic search in PubMed over the period 2013–2014 ultimately revealed 24 original articles included in this review. From this research update it can be concluded that the body of knowledge increased with more studies focusing on caregivers of patients with advanced heart failure.Summary: Caregivers are important partners in care and their lives are seriously affected by the condition of advanced heart failure. Studies on the longitudinal effects of the caregiving role on caregiver's quality of life and on caregiver contributions to patient outcomes is still scarce. Focus of current research is moving towards relationship aspects. Dyadic-care typologies and the concept of incongruence within dyads in terms of conflicting perspectives on how to manage the heart failure are new and important concepts presented in studies presented in this review. Heart failure patients and their caregivers still lack sufficient palliative care and communication on prognosis and end-of-life care. More research is needed to determine the optimal time to start palliative interventions to support caregivers of patients with advanced heart failure.",
keywords = "mantelzorg, gezinszorg, caregiving, family care",
author = "Anna Str{\"o}mberg and Luttik, {Marie Louise}",
year = "2015",
month = "3",
day = "1",
doi = "10.1097/SPC.0000000000000111",
language = "English",
volume = "9",
pages = "26--30",
journal = "Current opinion in supportive & palliative care",
issn = "1751-4266",
publisher = "Lippincott Williams & Wilkins",
number = "1",

}

Burden of caring : risks and consequences imposed on caregivers of those living and dying with advanced heart failure. / Strömberg, Anna; Luttik, Marie Louise.

In: Current opinion in supportive & palliative care, Vol. 9, No. 1, 01.03.2015, p. 26-30.

Research output: Contribution to journalLiterature reviewAcademicpeer-review

TY - JOUR

T1 - Burden of caring

T2 - risks and consequences imposed on caregivers of those living and dying with advanced heart failure

AU - Strömberg, Anna

AU - Luttik, Marie Louise

PY - 2015/3/1

Y1 - 2015/3/1

N2 - Purpose of review: To summarize the latest research on the risks and consequences of the burden that may be imposed on informal carers of persons living and dying with advanced heart failure.Recent findings: A systematic search in PubMed over the period 2013–2014 ultimately revealed 24 original articles included in this review. From this research update it can be concluded that the body of knowledge increased with more studies focusing on caregivers of patients with advanced heart failure.Summary: Caregivers are important partners in care and their lives are seriously affected by the condition of advanced heart failure. Studies on the longitudinal effects of the caregiving role on caregiver's quality of life and on caregiver contributions to patient outcomes is still scarce. Focus of current research is moving towards relationship aspects. Dyadic-care typologies and the concept of incongruence within dyads in terms of conflicting perspectives on how to manage the heart failure are new and important concepts presented in studies presented in this review. Heart failure patients and their caregivers still lack sufficient palliative care and communication on prognosis and end-of-life care. More research is needed to determine the optimal time to start palliative interventions to support caregivers of patients with advanced heart failure.

AB - Purpose of review: To summarize the latest research on the risks and consequences of the burden that may be imposed on informal carers of persons living and dying with advanced heart failure.Recent findings: A systematic search in PubMed over the period 2013–2014 ultimately revealed 24 original articles included in this review. From this research update it can be concluded that the body of knowledge increased with more studies focusing on caregivers of patients with advanced heart failure.Summary: Caregivers are important partners in care and their lives are seriously affected by the condition of advanced heart failure. Studies on the longitudinal effects of the caregiving role on caregiver's quality of life and on caregiver contributions to patient outcomes is still scarce. Focus of current research is moving towards relationship aspects. Dyadic-care typologies and the concept of incongruence within dyads in terms of conflicting perspectives on how to manage the heart failure are new and important concepts presented in studies presented in this review. Heart failure patients and their caregivers still lack sufficient palliative care and communication on prognosis and end-of-life care. More research is needed to determine the optimal time to start palliative interventions to support caregivers of patients with advanced heart failure.

KW - mantelzorg

KW - gezinszorg

KW - caregiving

KW - family care

U2 - 10.1097/SPC.0000000000000111

DO - 10.1097/SPC.0000000000000111

M3 - Literature review

VL - 9

SP - 26

EP - 30

JO - Current opinion in supportive & palliative care

JF - Current opinion in supportive & palliative care

SN - 1751-4266

IS - 1

ER -