An analysis of visual functioning and cerebral visual impairments in children with profound intellectual and multiple disabilities

M. Steendam, M. Wallroth, N. Tijmes, A. A. J. van der Putten, Aly Waninge

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

The aim of this study was to gain insight into the visual functioning of children with profound intellectuual and multiple disabilities (PIMD). A mixed methods study was performed, determining cross-sectional quantitative ophthalmological/orthoptic data, and qualitative observational data with a standardized research protocol (SRP) of 73 children with PIMD. Descriptive statistics and correlations were used for analyses of the data. Using ophthalmological data, 90.4% of the participants were found visually impaired. Based on the visual acuity (VA) testing, 49.6% of the participants had an impaired VA (<0.3), and 15.3% could not be tested. Applying the SRP, profound cerebral visual impairment (CVI) was found in 43.8% of the participants; severe CVI in 28.8%; mild CVI in 13.7%; and no CVI in 12.3%. The correlation (Spearman’s rho) between CVI and severity of motor impairments was 0.61 (p= .01). The results showed that visual impairment (VI) based on medical and ophthalmological data was present in nearly all of the participants with the highest prevalence among those with severe motor impairments. Providing specific information about visual functioning and the characteristics of CVI, using the SRP, may contribute to the individually adapted support of the development and partcipation of children with PIMD.
Original languageEnglish
Pages (from-to)1-17
JournalBritish Journal of Visual Impairment
DOIs
Publication statusPublished - 31 Jan 2024

Keywords

  • cerebral visual impairment
  • CVI characteristics
  • visual functioning in daily life
  • visual assessment
  • standardized research protocol
  • profound intellectual and multiple impairments
  • visual impairment

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